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Characteristics
| |
n*
|
|---|
|
Median age of first CNO symptoms, year (range)
|
8 (1–19)
| |
|
Median age of CNO diagnosis, year (range)
|
10 (2–22+)
| |
|
Survey completed by parent (%)
|
87
|
246
|
|
Male (%)
|
34
|
246
|
|
Race, white/Caucasian (%)
|
92
|
245
|
|
Ethnicity, non-Hispanic (%)
|
89
|
227
|
|
Country (%)
| |
247
|
|
North America
|
70
| |
|
Europe
|
22
| |
|
Other
|
8
| |
|
Time from symptom onset and 1st pediatric rheumatologist visit (%)
| |
239
|
|
< 6 mo
|
32
| |
|
6–12 mo
|
20
| |
|
> 12 mo
|
48
| |
|
Physicians seen prior to CNO diagnosis (%)
| |
284
|
|
PCP
|
77
| |
|
Orthopedic Surgeon
|
51
| |
|
Infectious Disease
|
31
| |
|
Biopsy performed (%)
|
79
|
213
|
|
Received antibiotics prior to CNO diagnosis (%)
|
35
|
284
|
|
Treated with antibiotics > 6 mo
|
24
|
96
|
|
Comorbid Conditions (%)
| |
284
|
|
Acne
|
11
| |
|
Psoriasis
|
10
| |
|
IBD
|
9
| |
|
PPP
|
8
| |
|
JIA (excluding ERA)
|
6
| |
|
AS/ERA
|
3
| |
|
Uveitis
|
3
| |
- PCP = primary care physician; IBD = inflammatory bowel disease; AS/ERA = Ankylosing Spondylitis/Enthesitis related arthritis; JIA = juvenile idiopathic arthritis; PPP = Palmoplantar pustulosis; mo = month
- *= number of participants who responded to survey question
